FACE-to-FACE Network
Families, Individuals who have experienced a craniofacial condition and expectant parents who discover that their baby will be born with craniofacial needs often feel isolated and want to connect with someone who has had similar experiences. Connecting with a caring person or family who share something in common, can sometime ease the fear, frustration and anxiety that a family maybe experiencing. We make connections available for: Expectant Parents, Parents of Newborn, Parents of School Age Children, Adolescence, and Adults. F.A.C.E. also provides exciting family events, such as the craniofacial children’s holiday party, picnics, entertainment events, and different social activities for craniofacial families to interact with other families in a non-judgmental environment.
If you have a personal experience and would like to help in matching with others that would like to connect with those experiencing similar situations, please contact F.A.C.E. and include:
- your name
- address
- phone number
- email
- age
- condition/syndrome
Mail To: F.A.C.E. P.O. Box 185 Unionville, CT 06085 or email smilesforchildren@sbcglobal.net Connections will be made on an as needed basis and you may experience a few a year at the most.
**F.A.C.E. Family Events: F.A.C.E. also provides exciting family events, such as craniofacial children's holiday party, picnics, entertainment events, and different social activities for craniofacial families in Connecticut or who receive treatment in Connecticut to interact with other families in a non-confrontational environment.
Support and Advocacy Center
Craniofacial families often contact F.A.C.E. to seek emotional support, to discuss problems and frustrations, the need of assistance in identifying resources. F.A.C.E. will also provide craniofacial families with all necessary means of educational material, family advocacy and in assisting craniofacial families with issues that they may have with insurance companies.
Public Awareness
A goal of F.A.C.E. is to promote social acceptance of children and adults with facial disfigurements and bridge the gap of misconception pertaining to craniofacial differences. F.A.C.E. believes through education, the general public will be able to accept, become aware and understand the trials and tribulations of having a craniofacial difference. F.A.C.E. also provides information to educate craniofacial patients and their families, health care providers, law enforcement officials and community leaders regarding the growing population of craniofacial differences and what obstacles that needs to be overcome.
Doctor Referral
F.A.C.E. refers to the members of the International Society of Craniomaxillofacial Surgeons. These surgeons’ direct teams of specialists specifically trained in the surgical management of problems involving the face and head. Centers with comprehensive craniofacial teams have the advantage of providing the quality of care which will result in fewer complications. Any medical questions that a family may have will be referred to a comprehensive craniofacial team and be directed by that team for the appropriate care and medical services.
Community Programs - F.A.C.E. is available as a speaker for Parent Groups, Hospitals, Peer Groups and Community Organizations. The topics to be discussed; Craniofacial Differences in the United States, The roles of F.A.C.E. in the community and The trials, tribulations and emotional factors that are involved when you have a child born with a craniofacial difference and what proactive measures are created to assist craniofacial children and their families. Also to be discussed are the joys of being a mother and advocate of a craniofacial child and how a smile from a child can put life into perspective. For further information and scheduling contact F.A.C.E. (860) 673-1829 or email
smilesforchildren@sbcglobal.net
Toll-Free Hotline
F.A.C.E. Has a Toll-Free number (1-888-380-FACE) since many families do not have the resources to pay for long distance phone calls. It is possible that without a referral to a craniofacial center, affected children may not receive the comprehensive, quality medical treatment. Via the Toll-Free Hotline F.A.C.E. can also provide the much needed support and education material that craniofacial families are seeking
ADDITIONAL PROGRAMS
